Autism - Top tips for parents information and advice

Following your child’s diagnosis of Autism, you may find the wealth of information and literature available to you a minefield.  These top tips have been created by parents of Swindon children who have Autism that you may find useful as a starting point:

  1. Read the Information leaflet that you were provided with by the Paediatrician following diagnosis. This provides you with links to useful local and national websites to help you understand your child’s diagnosis.  
  2. Join an online support group.

The SEND Room is an online Facebook support group for parents and carers of children and young people aged 0-25 in Swindon who have any Special Educational Needs and Disabilities in Swindon.

Swindon SEND Families Voice is a group of volunteer parents and carers working together to improve services for children/young adults with disabilities and additional needs in Swindon. They also run free workshops for parents and can signpost to support and information. 

A Support Group for Parents (Swindon Autism and ADHD) is a Facebook group for all parents and carers of children with Autistic Spectrum Conditions. It is a place for us to ask questions, find support from others in a similar position and to have a rant, cry or share that achievement.

  1. Attend a peer support group.

Branches is a local support group run by Swindon SEND Families Voice open to all parents and carers of children and young people with any special educational needs or disability, aged 0-25.

  1. Contact Aiming High for advice on accessible activities, social groups, short breaks and respite
  2. Register with Swindon Carers can help with benefit advice, carers support, signposting, young carers and run family activities.
  3. Register for an EarlyBird Programme. Early Bird programmes provide support and training for parents, carers and families when a child, between the ages of 4-8 years old, within the family has been diagnosed with an Autistic Spectrum Condition (ASC).
  4. Enquire about the Cygnet ProgrammeCygnet is a locally provided parenting support programme for parents and carers of children/young people aged 5-18 who have a diagnosis of an Autistic Spectrum Condition (ASC).
  5. Visit the National Autistic Society website for useful information and tips
  6. Sign up for the Family Links Managing Challenging Behaviour programme by contacting the Butterflies Centre on 01793 722984
  7. Get your child a Hidden Disability Lanyard from your GP practice or Great Western Hospital.

For more information see the following diagram on the assessment and diagnosis process for neurodevelopmental conditions. 

Attention deficit hyperactivity disorder (ADHD) - Top tips for parents information and advice 

Autism Spectrum Disorder services on the Local Offer 

Neurodevelopmental Conditions Waiting List Update story board

Impact Report Neurodevelopmental Conditions Referral Pathway story board

Autism Positive Practice Visits